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Team Blog

Hello, and welcome to the ITF Therapeutics Team Blog. We wanted to connect with people in the DMD community in a way that feels more personal than the usual corporate modes of communication. We will take turns writing about what we think may be helpful or interesting to you as you make your way through life with Duchenne. We will share what we do all day at work, explain new developments and what they may mean in the context of real life, and break down topics that may seem heavily scientific or otherwise difficult to sort through and make sense of.

As much as we want to introduce ourselves and keep you updated about key developments here at ITF Therapeutics, we also want to get to know you better. Your insights have played a central role in advancing our research and our effort to bring a new treatment to the community, and with your help we can make sure that we are always improving our ability to support you and meet your needs. In our blog posts we will often ask you for your opinions and questions – and we want to hear from you!

So please consider this blog as a two-way street, a place where we can learn more about each other and keep learning from each other. The more we share insights, the better we will get at making this world a better place for all people affected by DMD.

The ITF Team

FDA Approval Granted, Access Denied – Now What?

By Stephanie Trafton

Head of US Value & Access

10/4/24

The United States of America is famous for medical innovation. Our country leads the world in the number of new drugs and medical devices that are given the green light by our government. Unfortunately, this does not mean that every approved new... Read More

What Makes an Expert?

By Scott Baver

Vice President, Head of US Medical Affairs

9/23/24

I have been studying neuroscience and working in the field of neuromuscular disease for more than 20 years. I may have the academic degrees and the work experience to qualify as an "expert," but there's no doubt in my mind that the real experts are you... Read More

A Good Day

By Caroline Allen

Head, US Patient Advocacy & Communications

7/25/24

In the long path to new treatments for Duchenne, today is a good day. A new medicine that is designed to interfere with Duchenne’s relentless progression is now officially available in the United States. While I am feeling positive and hopeful because of this... Read More